Bernard-Soulier Syndrome
One of the major purposes of this web site is to help physicians and patients learn more about the Syndrome. It is not clear how many patients suffer from the syndrome or if there is a regional variation in occurrence. We have set up this site so that physicians will contribute to the registry. Patients will remain anonymous and will only be known to their own physician. In time we hope that this registry will act as a resource internationally. If you are a patient we would encourage you to ask your physician to contribute to the site. We also welcome any suggestions to modify this site which will help all those who are involved in this disorder.